When my mom would tuck me in as a little girl, this was the verse she would give me. “Whenever I am afraid, I will trust in You” ( Psalm 56:3). There is no better place to find hope and help than God’s Word! Choose a verse and say it out loud in the presence of the fear that feels overwhelming to you. Grab hold of one of these verses and claim it as your prayer and battle cry this week over your fear. God’s Word offers truth, promises, and prayers as remedy to cure the heart of the uneasy worry that seems to wreck us.
Together we can do anything.While we all wrestle with our own fears, there is one common place we can run to when fear gets ahold of our hearts. My mommy and daddy got me, and God’s got them. I gotta have faith and not be afraid of the future. So far everything is good and we keep praying that we will have more good days than bad. They keep trying to get me to talk but I like listening to them better. I have to eat really special food to try and keep my levels low. In the meantime, they worked really hard to get me to walk and I was walking by my first birthday. A transplant is the only thing that could make this go away, and even that’s not garunteed, but I know my mommy and daddy pray for me to get on that list every day. And that’s one thing the doctor has told us every month, my levels keep rising. If my levels keep going up I need a liver transplant. My mommy tells me I’m her sunshine everyday and I love getting to sit with her and daddy everynight. Every two hours they had to feed me. All these people came to see me and I got lots of snuggles and made everyone smile. But mommy and daddy kept praying and not sleeping. In my first six months of life, I was in the hospital twice. It’s a scary balancing act my mommy and daddy have to do everyday to keep me healthy. I have to drink this special low protein formula everyday and take my medicine. It goes back into my blood and makes me really sick. When you eat food, your liver processes the protein and you release the ammonia through your pee. Apparently, that’s what I have a problem with. I heard the doctor tell my mommy that mother nature knows best which meant I could still have mommy’s milk even though it was really high in protein. After the doctor said that, the room got very quiet. If they didn’t take action right away, I could have developmental delays, physcial deformities, go into a coma and die. That there was something wrong with my liver. He told my mommy and daddy that my arginase amino acid was too high. The phone rang the next day and my mommy and daddy were told they needed to go to Austin, Texas to see a special doctor. They didn’t understand why we were told to come to the emergency room because a blood draw wasn’t an “emergent” thing. The doctors and nurses poked me so many times trying to find my veins. OUCH! I was screaming because I wanted my mommy, but she was crying because I was crying. So, mommy and daddy took me to my very first emergency room visit. The lady said there was something wrong with one of the tests the doctor had run at the hospital and my numbers were high and that wasn’t good. I could hear him yelling at the lady on the other end about why we weren’t going to go to an emergency room because I had just got to go home and everything was fine. They laughed, I laughed….and then the phone rang again. I thought that was a good thing. While we were at my newborn follow up appointment I decided to give my mommy a blow-out present just to make her and daddy laugh. She told my daddy that my test levels were high. I could hear the panic in my mommy’s voice. It was a blissful two days at home with my mommy and daddy….and then the phone rang. In the meantime, my breathing leveld out and they removed the tubes and I was able to breathe on my own so the doctors let me go home after a week in that place where those people kept wanting my blood. Then the doctor saw something that made him want to run an amino acid test. My bilirubin levels were increasing so they put me under a bright blue light. There were so many people and wires and needles! The doctor pricked my heel for the newborn screen that Texas requires. Once I got there other stuff started to go wrong. Right after I entered the world I was sent away from my mommy to NICU because I was breathing too fast and they wanted to put me on oxygen.
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